celebrities with bicuspid aortic valve
My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. Your responses mean a lot to myself and no doubt others on this forum. Probably wise to follow the advice of your doctors who know the details of your situation. We dont know what to do. Bicuspid Aortic Disease | Cedars-Sinai I got Edwards magna perimount 25mm bovine AV and Valsava graft for aortic root replacement. It has a male predominance and often occurs in multiple members of the same family, suggesting that it may have an autosomal dominant inheritance, perhaps with variable penetrance. I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. . As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. Young actor receives groundbreaking aortic valve repair Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. BAV was diagnosed in 196 newborns (prevalence, 0.77%), with a male-female ratio of 2.1:1. My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. All Rights Reserved. However, randomized, controlled trials have excluded bicuspid aortic valve (BAV), which is the most frequent congenital heart disease occurring in 1% to 2% of the total population and representing at least 25% of patients 80 years of age or older referred for aortic valve replacement. There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. First, Id encourage you to follow your doctors advice. The material on this site may not be reproduced, distributed, transmitted, cached or otherwise used, except with the prior written permission of Cond Nast. Instead, even with continued sports participation, the progression of both valvular and aortic disease is no different from that in the general population. I knew none of this until a year ago. So my question: does there appear to be any performance advantage of tissue valves over mechanical or does the fact that Im on the anticoagulant anyway make the mechanical valve sort of a no brainer choice? It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . No one loves life more than I do, read the statement. I have only played a few games of football in the last 5 years due to a knee injury but I have continued running for fun and do 5k in a reasonable 25 minutes. 2. Hi . As I have aged I have upped the reps to 15 or more and two or three sets max, sometimes doing a set or two of 5 reps with heavier weights. Bicuspid aortic valve - Overview - Mayo Clinic Between one and two percent of all people have this defect, and it affects more men than women. Unfortunately, I really cant point you to such studies. Before that, I had never seen a cardiologist ever. 1. 2. Unfortunatly that`s pretty much all the advice i`ve been given so far, so little out there on what i can actively do and what i can`t. These techniques are most applicable to situations in which there is regurgitation, rather than stenosis, of the valve and when there is also enlargement of the aorta. Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. Many thanks. Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. The reason I ask is my Cardiologist said it looked fine in the echo imaging, but (and correct me if Im wrong please) I got the impression from what you said in this article that a CT or MRI is necessary for aortic diameter measurement. You might be wondering, with no disrespect to the great people of Cleveland, why Schwarzenegger, who surely has access to the finest hospitals under the sun, would choose to have surgery there. There have been reports of lingering effects (decreased function of the left or right ventricles) for several days after marathon runs. During pregnancy. Finally, athletes are not spared. Also, due to a bout of DVT and elevated d-dimers Im on Warfarin for life. 2023 Cond Nast. Im 33 from UK and have known about my BAV since I was around 18. They dont know they have it [It] leaks blood. I exercise, eat well and keep my weight down. I was wondering if you could give your opinion on my scenario. Dear Dr Creswell you seem to be such a kind cardiac surgeon to make yourself available in answering questions. I had surgery when I was 10 years old to replace my bav with a St.jude mechanical valve. Now I wanted to start again (also due to the 8kg I accumulated in the meanwhile:( ) and I discovered that I can barely run 5K in 30 min and I generally find it very difficult to run. And I dont know if my Cardiologist follows the same guidlines, but I dont think hes under the impression that Im any kind of athlete either. Ive yet to feel like Im back to my previous racing fitness that I once had. Regarding activity restrictions, you would do best to rely on the advice of your sons doctor(s) who will be in the best position to know the relevant specifics. Ever since undergoing open heart surgery in 2010 for her surprise diagnosis of heart disease, Jones has worked as a national ambassador for the American Heart Association to raise awareness. Looking through the reader comments here at the blog and reflecting on the athlete inquiries Ive received, I thought Id cover some of the major issues. Your doctor will be in the best position to know all of the relevant information and offer sound advice. Im not sure how those two problems would be related. I know that heart surgery can be scary.but I also know that for the vast majority of patients with these conditions, surgery goes well and the outcomes are good. Many heart conditions can be controlled or repaired once theyre diagnosed. Thank you to every doc and nurse on my team.". The 72-year-old soap oprea legend started feeling a tightness in her chest in Fall 2018, but waved it off until the end of October, when she had to be rushed to the hospital. Just still unsure however if my bioprosthetic valve affects my cross country running times. Thats the reason we try to place the largest possible substitute valve in patients who need replacement. Rather than just sit there and do nothing about how much I missed [my mother], I put all of that pain, sorrow and longing for my mother into helping educate and make people aware. Im in Philly today but Im from Central NY. I have almost everyday all day shortness of breath which follows with chest pain and discomfort. diagnosed wid BAV AND AS WITH AR No pulmonary hypertension Would you recommend taking beta-blockers at this stage? Advice here will be based on opinion rather than accumulated evidence in large numbers of children with BAV. How a Fitness Trainer Manages Bicuspid Aortic Valve Disease - Men's Health When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. In March 2019, media outlets hailed two new studies on transcatheter aortic valve replacement (TAVR) as potentially signaling the beginning of the end of open heart surgery for aortic stenosis. So I saw an incredible surgeon and we are going for the Ross Procedure in Feb. Now that we know the type of surgery does this improve my chances or one day returning the CrossFit addicted life I miss? He is football player and he has training 5 times per week (for about 1,5 hours each). It seems to be a very interesting option for those who have aortic dilatation due to Marfan or BAV (which is my case). The CVTI was created under the leadership of Dr. Vaughn Starnes, chair of the Department of Cardiothoracic Surgery and surgeon-in-chief at the Keck Medicine of USC. Thank you so much! Sheer brutality and trauma caused Myasthenia Gravis. This have affected my son psychologically since he loves playing soccer what should I do. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. Your sons cardiologist would seem to be in the best position to offer specific advice. More on Athletes and Bicuspid Aortic Valve (BAV) - Athlete's Heart Blog Any guidelines? Thank you for the blog that addresses the athletes point of view, and feelings. TAVR is a relTively new technology where a new heart valve, shrunk onto a catheter, can be threaded through the bloodstream (usually through a leg artery) to where your current valve sits.and then expanded inside the current valve, pushing it aside. I am a 55 years old male and have BAV. Eventually I will need valve replacement. I had to take time off gym, when I returned I only did light weights and only walking on the 4x a wk and the same issues where still there. There were some procedural differences between the bicuspid and tricuspid groups. (Yes, I have been going for regular check-up since in was about 7 years old. ), What do you think? He wants to be normal. His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the My performance as a cyclistgiven my ageputs me in the elite category, although with the stenosis I am experiencing a definite decline in performance. In your case, though, the infection might well influence the healing process. Thank you to every doc and nurse on my team!". It will also be necessary to keep a close eye on the size of the aorta over time, using echocardiography and CT. This has caused a Thoracic aortic aneurysm that is 4.3 cm. In fact, in some people they can go undiagnosed for years. Film star, former California governor, and seven time winner of the Mr. Olympia title Arnold Schwarzenegger published positive images to his social media platforms on Friday as he recovered from heart surgery. Is that so, or can it be measured by the echocardiogram as well? Hi Larry, thanks for doing this website, I wish there were more like it. Theres no reason to not be CPR certified.. There are several variations of this procedure that are applicable in specific situations. Thanks for sharing. Star Jones. Thank you sincerely for your time and information. Substitute valves. Is it right to declared someone having BAV unfit for the post of a chemist? Hey was born with BAV and moderate regurgitation and stenosis, and dilatation of his ascending aorta. May 11, 2010 -- Barbara Walters said on Monday that her upcoming heart surgery, a procedure known as an aortic valve replacement, will hopefully correct a problem of which . Editorial Review: Andrea Cohen, Editorial Director, Baldwin Publishing, Inc. My question is if my weight&lack of training or my BAV is the cause of difficulty in running. Call 911. Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. Since I started running, I lost about 8 kg, my blood pressure decreased from 140/90 to 120/80-70. In January 2021, she underwent open heart surgery to install an aortic valve. Its now 8 months after surgery and Im pretty much back in my every day life, was even granted to attend my pilot medical tests which are due in 2 weeks. One situation that seems particularly ripe for differences of opinion is that of the athlete with BAV, no significant stenosis or regurgitation, but with an aortic diameter of 4.5 to 5.0 cm. It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. will need careful consideration by your physicians who know all of the pertinent details. ps. No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. Bicuspid aortic valve is a heart problem present at birth. And during the years, this remained pretty stable. A cadaver if valve is then used to replace his pulmonary valve. Prevalence of Bicuspid Aortic Valve in Newborns Often times, especially for patients with tissue heart valve replacement devices, the valve simply wears out. I was born with a BAV and but I didnt notice performance issues until the Summer of 2016, so I brought myself to the doctor. This was caused by an aneurysm in the ascending aorta (root) that measured over 6 centimeters). Really helpful. This is ridiculous. Parenthetically, it may be time for an update. I played competitive amateur football (soccer) on Saturday and Sunday from age 16. Best Valentine's Day Restaurant Specials 2023. There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. Data from these studies supported the U.S. Food and Drug Administration's approval of TAVR for low-risk individuals - replacing a narrowed aortic valve through a small incision in a procedure . I cant do that justice here. I would pose these questions to your doctor(s) since they are most familiar with the details of your situation. If I had to choose a valve for AVR, Id choose a tissue valve. All they said is dont really do weight where you can feel the strain in your neck ?!? The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. I do think that this condition can weigh heavily on patients minds, though, and in your case perhaps particularly so because of the experience of your mother. Hey has been physically active with restrictions of no contact sports, and no isometric exercise. Perhaps you could print out the diagram, take it with you to the cardiologist, and ask him/her to circle the forms of exercise that would be safe in your case. Vanity Fair may earn a portion of sales from products that are purchased through our site as part of our Affiliate Partnerships with retailers. Dr. Larry, I do appreciate your insightful article very much. Looking forward to hearing your thoughts. Athletes in this circumstance should collect opinions from their doctor(s) and make very careful considerations before returning to exercise. He was just diagnosed with functional BAV due to partial stuck together of two leaflets (out of three, as far as I understand, they are equal). We want our patients to know that whatever the level of care they need, our team will design and implement the health plan that works best for them, Starnes said. Im wondering if you can advise me. Obviously, I underwent emergency surgery to replace the aortic valve (Medtronic open pivot mechanical valve) and have the aneurysm repaired with a dacron graft. There is very little scientific evidence to guide us here. Hi Dr. Creswell. Thank you very much for your thoughtful response. Thank you for your assistance in this matter. Coarctation of the aorta is a narrowing that may produce an increase in the blood pressure in the upper extremities. Perhaps a cardiac surgeon would be able to provide even more detailed information about things like various options for operation that might be applicable in your case as well as thoughts about when operation should be performed. Got rheumatic heart disease in my childhood and now have fibrosis of the aortic valve with regurgitation (1-2), mitral valve prolapse with regurgitation (1-2) and tricuspid valve regurgitation (1). Last week I visited a doctor and here are the changes for the last year (before|after): Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. BAV is the most prevalent congenital heart defect, but can go undetected for years - even into adulthood. The current guidelines suggest that sports activities do not need to be restricted for patients with BAV who have no valve regurgitation/stenosis and who have no enlargement of the nearby aorta. I agree that your doctor(s) are in the best position to offer advice regarding safe exercise based upon your particular circumstances. I am mostly a runner, 4 times a week, with 10 21 km races. These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. My cardiologist (whom I trust) said to keep working out like I always have (good news for me). Ordinarily, athlete patients with mild degrees of valve regurgitation can continue to participate in their sports. Youll need to rely on your doctors for advice about your condition. My son at 11 months was diagnosed with BAV. I am perfectly happy to stick to the 10km max distance for races, but my key concern is that if I do run some faster training sessions then I might have a sudden death. An early indicator of BAV is a heart murmur, which is an abnormal sound caused by the turbulent . I would not want yo distinguish between the various forms of static exercise that you mention. The actress, 44, found out she had a leaky valve in 2002. is my lack of top end performance indicative of someone with BAV & aortic coarctation? Semilunar valves: The pulmonary valve and aortic valve. It makes the heart work harder than it should. Celebrities Who Have Opened Up About Heart Health - Peoplemag I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. Common symptoms include chest pain, shortness of breath, dizziness and fainting. Ive done the Philly a Marathon a coup,e times and know that its a terrific event. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. And, of course, aortic stenosis can affect ones native aortic valve or a prosthetic valve substitute. Very likely an operation will be needed at some point in the future. I would like to thank you very much for providing me with your thoughts. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? Now I take brisk walks and run on the treadmill only occasionally. Hannah Yona Fraint, M.D. Arnold Schwarzenegger opted against a mechanical valve replacement and chose a tissue valve because he felt a mechanical valve might limit his physical activity and capacity to exercise. I am big for my age . Thats important to keep in mind. ", Braxton is a survivor of pericarditis, an inflammation of the sac surrounding the heart. They all underwent aortic valve replacement. This is such an interesting blog, I wish I had known of it sooner. The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. Operation is needed if there is severe aortic valve stenosis, severe valve regurgitation, or significant enlargement of the aorta. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. At this time, it is not known whether Arnold received the new valve using a surgical aortic . I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. My son is a baseball player, so that is good. If you havent yet seen a surgeon, perhaps a visit would all wan opportunity to talk about these issues, even if operation is not yet needed. Mayo Clinic Q and A: Treatment and management of bicuspid aortic valve Perhaps that will provide so e reassurance. Holding breath during lifts valsalva). According to reports (and my new cardiologist), this congenital variation . "I Googled 'womens' heart attack symptoms,' " her blog post continued. But like a lot of women, I thought that heart disease was an old white guys disease," the former talk show, 56, host tells PEOPLE. The doctors tell me I will be able to run again at a level near to what Im accustomed to (50-60 miles per week) but are reluctant at this point to specifically tell me the limitations and restrictions Im to endure. This might reasonably translate into some measurable improvement related to physical exercise. Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. Regards Celebrities with congenital heart disease Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. At this appointment she advised that there has been some progression in his regurgitation and she did a stress test on him which did not show any concerns and hey was a ble to do it for almost 12 minutes. Aortic Valve Regurgitation | 8 Causes, Does It Worsen, & Prognosis Im afraid Ill end up like my Mom. Up until this time shes played volleyball, basketball and has even run track in elementary. Please refer to this article if not: https://academic.oup.com/ejcts/article/50/3/400/2197426. How are you? 4.2cm dilated aortic root The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. Thus far shes had only minor bruising (shes 6ft and has a solid build). 3. I have wife and two small boys, I wanna live to see my grandchildren. http://www.energystretch.com His whirlwind romance with Katherine Schwarzenegger has resulted in a rather large ring on her finger. Every 6 months it is getting larger. Typically, the aortic valve has three cusps (tricuspid aortic valve), but some people are born with an aortic valve that has two cusps (bicuspid aortic valve). I think its reasonable to think of things this way.